Global Genes RARE Patient Impact Grants

Nontraditional Participatory grantmaking

A grant stream that puts money directly into rare disease patient advocacy organizations rather than into universities. Past cycles funded educational tools and resources to improve health equity in underserved and underrepresented rare disease populations, in-person convenings and community building, and programs addressing the health and mental wellbeing of the rare disease community, naming children, siblings, caregivers and care partners, and people who are grieving. That sibling-and-bereavement framing is rare in condition-foundation funding and maps directly onto family-systems social wo

Indicative award

Amount not published (varies by call)Global Genes publishes no grant size or funding range on this page; the page directs interested organizations to download a prospectus or contact Global Genes.

Timing

Varies by programmeNo specific published date recorded. This funder publishes a cycle rather than a date, and this database does not invent one.No deadline dates are published on the page. It describes past cycles, most recently 2023, and directs organizations to contact Global Genes for current application information.

Who can apply

Community organisation, Practitioner

Eligibility

Applicants must be rare disease patient advocacy organizations that are members of the Global Genes Global Advocacy Alliance. A university cannot be the applicant and researchers outside the Alliance cannot apply directly. The route for a social work researcher is to partner with a member advocacy organization that holds the grant and to serve as the evaluation or research partner on that organization's project.

SSWR clusters

Topics

rare disease · caregivers and siblings · grief and bereavement · health equity

Apply at

https://globalgenes.org/rare-impact-grant-opportunities/

This entry

Curated by the working group. Written 2026-08-07. The funder link has not yet been machine-checked.

Amounts and dates on this page are indicative and are maintained by people rather than scraped. Funders change ceilings, windows and eligibility without notice; confirm all details at the source above before applying.

← Back to the database

Global Genes RARE Patient Impact Grants

Also on the Health shelf