Addressing Health Outcomes for Individuals With Intellectual and Developmental Disabilities (IDD) and/or Rare Diseases (RD) PCORI Funding Announcement — Cycle 3 2026
Patient-Centered Outcomes Research Institute (PCORI)
Funds patient-centered comparative effectiveness research on people with intellectual and developmental disabilities or rare diseases. Emphasis areas include access to person-centered care and health-system approaches to care transitions, including the pediatric-to-adult transition.
- Indicative award
- up to $12M (total award)Up to $60 million available; individual applications may request direct costs up to $12 million over up to five years, and may include patient care costs within that direct-cost maximum. No minimum published.
- Timing
- Several times a yearSeveral times a year · Jan, May, SepPublished deadline: 2026-09-09 — 26 days awayPFA opened Aug. 4, 2026. LOI deadline Sept. 9, 2026, 5 pm ET; LOI status Oct. 14, 2026; invited application deadline Jan. 12, 2027, 5 pm ET; merit review March 2027; awards announced August 2027; earliest start December 2027.
- Who can apply
- Any faculty rank, Mid-career & senior, Early-career faculty
- Eligibility
- Organisation-submitted; must address PCORI's Foundational Expectations for Partnerships in Research with meaningful engagement of people with IDD/RD and caregivers. Accepted LOI and PCORI invitation required before full application. Applications may focus on either IDD or RD; addressing both confers no advantage.
- SSWR clusters
- Topics
- intellectual and developmental disabilities · rare disease · care transitions · access to care · caregiver outcomes
- Apply at
- https://www.pcori.org/funding-opportunities/announcement/addressing-health-outcomes-individuals-intellectual-and-developmental-disabilities-idd-andor-rare-diseases-rd-pcori-funding-announcement-cycle-3-2026
- This entry
- Curated by the working group. Written 2026-08-07. The funder link has not yet been machine-checked.
Amounts and dates on this page are indicative and are maintained by people rather than scraped. Funders change ceilings, windows and eligibility without notice; confirm all details at the source above before applying.
Also on the Disability shelf
- Health services research grantsAgency for Healthcare Research and QualityAmount not published · Several times a year · Feb, Jun, Oct
- Education Research GrantsInstitute of Education Sciences, U.S. Department of Education$100k–$4M · Annual cycle · Aug
- Congressionally Directed Medical Research ProgramsU.S. Department of DefenseAmount not published · Annual cycle · Apr, May, Jun, Jul
- Disability and aging research and demonstration grantsAdministration for Community Living$200k–$4M · Annual cycle
- Patient-centered outcomes research fundingPatient-Centered Outcomes Research Institute$500k–$10M · Several times a year · Jan, May, Sep
- Grants in aging and serious illness careThe John A. Hartford Foundation$250k–$3M · By invitation